Monday, April 25, 2011

Not much new here...

There really hasn't been much new info to report. 

We're enjoying being dogless...the house feels cleaner, with less responsibility, less guilt, and a little less chaos. I miss Apollo, but his life is AMAZING now! I get lots of updates and he's doing really great. I'm sure we'll see him really soon...I can't imagine he misses us at all!

As far as Ava is concerned, she just had a blood panel last week and her iron level was just below normal. She is still on her canned formula and seems to be getting a bit "reflux-y" and "gag-y" (those are real medical terms...right?). I spent some time with a nutritionist who has designed 2 formulas for Ava which are more balanced than mine, and I have asked her doctor if I can get her back on real food. The doctor is on vacation (what a surprise) until next week, so we'll wait.

I don't normally ask permission to do things when it comes to Ava's well being, but I feel like her current doctors are truly on our side in all of this. Her GI asked to be "kept in the loop" as far as her formula goes, so I don't want to offend or alienate the first doctor that has actually taken a real interest in our case and allowed (and respected) my opinion.

So, for now, that's all I've got. Life has been pretty normal around here with school, gymnastics, and softball. Other than doing tube-feedings every 3 hours, I kinda feel like a regular family. Both girls are growing and thriving and we've been experiencing a lot more laughter and lightness. Life has felt far more "easy" over the last 6 months or so. We are eternally grateful for the reprieve, and we're trying to enjoy every minute of it! 

Hopefully I'll have more soon.

Waiting for Playhouse Disney

Happy Girl

Zoe can ride the swing by herself!!! (When she wears her tall shoes...)

Swimming at Grandma & Grandpa's

In over 300 visits to Disneyland over the last 4 years, we've NEVER seen this guy!!! Wish we'd had the girls autograph books.

Sweet girl


  1. Thanks for sharing the beautiful pics of the girls!

    New Follower via Follow Me, Chickadee Tuesdays

    Life Below Zero

  2. I found your blog through tubefeedingawareness. I have a daughter (now almost 3 years old) who stopped eating at about 2 weeks of age for no reason. We were in and out of the hospital and finally came howe with an ng tube at 6 weeks. She was diagnosed with FTT and severe reflux (even though none of the medicines made a difference for her). She was tube fed until 9 months of age. It was from a second opinion that made us stop...anyway we are currently almost 3 and weighing 25 lbs. She is perfectly normal and healthy only little and still has trouble putting on weight. She does have a slight speech delay but other than that nothing. Your story sounds so similar to mine. I try not to obsess over our daughters not gaining weight like she should but I still do. I always check syndromes with her characteristics but come up with no matches. I guess it is nice to see I am not the only one trying figure out the eating issues without any answers

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